Guidance and resources

Guidance and resources

Getting Started

There are many how to guides, here are some that we find especially useful.

  1. NIHR Public Involvement Pocket Guide – a brief guide to public involvement in funding applications and how the NIHR RDS can help
  2. NIHR Centre for Engagement and Dissemination (previously INVOLVE) – COVID-19 Statement and Commitment
  3. Useful virtual public involvement tools from the NIHR School for Primary Care Research
  4. Top Tips for Carrying Out PPI Activities during COVID-19, via RDS South Central
  5. Engaging black, Asian and minority ethnic communities in public involvement for health research presentation
  6. INVOLVE Briefing Notes for Researchers – this online guide includes ten briefing notes for researchers, it also includes supplements, case studies and templates. It may also be downloaded as a pdf.
  7. INVOLVE Public Information Pack 2018. How to get actively involved in NHS, public health and social care research – Getting started. The Public Information pack (PIP) is made up of four booklets and is for members of the public who are interested in getting involved in NHS, public health and social care research. The booklets have been produced by INVOLVE with support and advice from members of the public to help us ensure we cover the kind of information people need when first getting involved in research.
  8. HRA Top Tips for public involvement in your research application including ten questions to ask about your public involvement.
  9. Patient and public involvement in research handbook, Collaboration for Leadership in Applied Health Research and Care East of England
  10. Guidance for Researchers: Feedback Centre for Research in Public Health and Community Care, University of Hertfordshire
  11. NIHR Clinical Research Network Eastern, Recruitment Enhancement Tool for Researchers. This document produced by NIHR Clinical Research Network Eastern is a recruitment enhancement tool, based on feedback from over 7,000 research participants between 2015 and 2020. The aim of the document is to give the researcher a better understanding so they might design a study which gives participants a good experience to ensure recruitment and retention to the study is successful.

Budgeting for involvement

It is very important to prepare a detailed and reasonable costing for your research funding application and these resources will help you.

  1. INVOLVE Budgeting for Involvement This guide provides practical advice on how to budget for involving patients, carers and the public in research. It will be helpful for working out the costs of involvement at any stage of the research process.
  2. Involvement Cost Calculator to work out the actual costs of involving people in your research.
  3. NIHR Centre for Engagement and Dissemination recognition payments for public contributors
    Presentation slides for webinar on 21/4/21 can be downloaded from HERE and a full recording is now available on our YouTube channel: